Lifestyle & Trends - Community
Rare Disease Impact Report quantifies patient and caregiver challenges on journey to diagnosis and beyond
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Getting a diagnosis is just the first of many challenges patients with rare diseases - and their caregivers - face.
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How your unused airline miles can help a child
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Helping a child in need may be easier than you think, by redirecting a common resource that often just goes to waste.
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Technology can turn $25 into a family giving tradition
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Technology has been connecting families for generations. The invention of the phone let us hear voices of loved ones far away, and the creation of the Internet helped us to see them. Today, those same technologies that we've used to bring our families closer together are helping us to connect with and support families who are worlds apart. In doing so, the very concept and experience of "gifting" and philanthropy is being transformed.
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Rare diseases: Increasing awareness for better patient outcomes
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Getting a diagnosis of any cancer can be frightening, but for those diagnosed with a rare cancer, the emotional toll can be much worse. For some of these patients, the journey to a correct diagnosis may take years, and once they receive an accurate diagnosis, it can be extremely difficult for these patients to find accurate information on their disease. One of the first things patients do is research everything they can about their illness, including connecting with someone who is also living with the disease, and learning their options for disease management and treatment.
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Five reasons Asian Americans should get tested for hepatitis B
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More than 1 million Americans have a lifelong, or chronic, infection of hepatitis B. This includes one out of every 12 Asian Americans. If you or your parents were born in Asia or the Pacific Islands, the Centers for Disease Control and Prevention (CDC) recommends that you get tested for hepatitis B.
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IE6 Float Fix
